When I read this article, I was shocked! Because most people assume, vegetarians are healthy people. Actually, when I went through my professional training, I learned this is not true. It was something I realized, very quickly. But it is still something, that many people believe.
This study, was still shocking to me. Vegetarians are at a higher risk, for developing colon cancer? You always hear how meat, red meat consumption in particular, is linked to colon cancer. So how in the world, could vegetarianism, be linked too?
Well, it goes back to that thing called "inflammation." Which is bad, for a number of health issues. A leading cause, for many diseases. In this study, unsaturated omega-3 and omega-6 fatty acids, seem to be the trigger.
While I was working and going to college, we'd study many things like this. A positive, to going to a university, that focused on agriculture. One that worked closely, with our food consumption, in the United States. And you'd be shocked, by how many studies we'd do, that would find similar things.
Most diseases that we studied, were studied at the cellular level. Meaning that we'd study how the body's cells, reacted to different situations. What made, our cells change? And how did they change? What would happen to a cell, when it was influenced, by an outside trigger. Like diet, food additives, pesticides, disease, inflammation. Most of the time, we were looking for triggers. Because the links, between certain diets and diseases, were already established. We wanted to know, how and why things happened.
In my opinion, a well balanced, healthy diet is still supreme. Eliminating any food group, has risks associated with it. Yes, I practice Meatless Mondays. And try to keep my sugar consumption, relatively low. I just find this study, to be extra shocking.
At the end of the day, it is your right, to eat whatever you'd like. But just don't forget that fiber! Think about keeping most of your plate, packed with colorful fruits and vegetables. But it's still important, to eat protein. This study, is just another example of that. ❤❤❤
A place to discuss colon cancer, to continue Blue's work, and to talk about life...after losing our Superman!
Showing posts with label Colon Cancer. Show all posts
Showing posts with label Colon Cancer. Show all posts
Monday, April 11, 2016
Monday, April 4, 2016
Coffee and Colon Cancer
If there is one thing, that you should know about my Daddy, he was a coffee drinker. Through and through. My entire family is. Really. I was once, a coffee addict too. But my Dad, he had us all beat! So when I came across this article, it sort of made me chuckle.
You see, you have a 26% lower risk of developing colon cancer, if you drink 1-2 cups of coffee daily. If you drink 2.5 cups or more daily, your risk is lowered 50%. It doesn't matter if it's caffeinated, or decaffeinated coffee. Just the amount.
In short, after all the other risk factors, associated with colon cancer, daily coffee consumption helps. Drastically. It makes me think, I should be incredibly grateful to my Dad's coffee addiction. Although he was diagnosed with Stage 4 Colon Cancer, his 4-6 cups of coffee, every single day...probably bought us some time.
And although this is a relatively small study, it does bring hope. Hope that there are things, that we do daily, that somehow protect our bodies. That give us, the slightest hope, that we can beat this beast. So coffee, Thank You! I'm sure, you gave me just a little more time, with my Daddy! ❤❤❤
You see, you have a 26% lower risk of developing colon cancer, if you drink 1-2 cups of coffee daily. If you drink 2.5 cups or more daily, your risk is lowered 50%. It doesn't matter if it's caffeinated, or decaffeinated coffee. Just the amount.
In short, after all the other risk factors, associated with colon cancer, daily coffee consumption helps. Drastically. It makes me think, I should be incredibly grateful to my Dad's coffee addiction. Although he was diagnosed with Stage 4 Colon Cancer, his 4-6 cups of coffee, every single day...probably bought us some time.
And although this is a relatively small study, it does bring hope. Hope that there are things, that we do daily, that somehow protect our bodies. That give us, the slightest hope, that we can beat this beast. So coffee, Thank You! I'm sure, you gave me just a little more time, with my Daddy! ❤❤❤
Monday, March 21, 2016
Treating the Elderly
Fighting and treating colon cancer, any cancer really, is expensive. For us, like everyone else, there was a financial toll. My Dad had amazing insurance. But it didn't mean, that we were worry free. Medications, treatments, doctors' appointments, tests, and hospitalizations...they add up quickly! But when you are trying to save someone's life, those costs don't matter. You'd probably walk to the end of the earth, and back. I know I would!
When I came across this article last week, it didn't surprise me. When we first began, the battle, our oncologist warned us. About the costs, the side effects, and my Dad's projected life expectancy. Actually, in so many words, he encouraged us to go home, and enjoy my Dad...and his life, while we still could.
You see, my Dad was 81 years old. In relatively poor health. And all these treatments, might give my Dad, an additional year. MIGHT! My Dad had been diagnosed with Stage 4 Colon Cancer. He also had severe anemia, due to the cancer. He had diabetes, and epilepsy. And the cancer had spread into his liver. There was only one doctor, that would even consider surgery on his liver. My Dad was high risk. And his lifelong battle, with epilepsy, didn't help.
In fact, for his surgery, to remove most of his intestines and to place his stoma...we hit a road block. No anesthesiologists, wanted to treat him. Our surgeon had to practically jump through hoops, that were on fire. To get someone, to join him in the operating room. Because my Dad had, had a serious of seizures. After a million tests and scans...and some medical history, the doctors felt like the cancer was contributing to the seizures. Because my Dad had previously been seizure free, for over 3 years. So he was cleared for surgery.
But my Dad wanted to live. And if the chemo and radiation, would give him an extra day, he'd try it too. He'd try anything. And everything. My Dad didn't have the "typical" symptoms and side effects. But you could tell, that all the treatments, were taking a toll. He struggled a lot. With energy. With pneumonia. And with seizures.
We'd end up on Palliative Care. To help keep a better eye, on my Dad's health. Our doctor would personally call up our insurance company, many times, to argue about care. He'd give my Dad the options. My Dad would ALWAYS choose, to do treatments. And our doctor, would fight to get the treatments approved.
There were also many "supportive medications," that my Dad took. To keep his quality of health, somewhat better. These medications, often times, had high costs attached to them. But my Dad was a fighter. And he was trying to live.
Looking back, I don't know if it was the best decision. But it was my Dad's decision. My Mom and I would listen to the doctors, and my Dad would make the decisions. We were his support system. I can't say, that if I were in his place, that I would have made those same decisions. But we were all educated on the issues. And supported my Dad's decisions.
From the time that we first met our oncologist, until my Dad's passing, it was around 9 months. At our initial appointment, we were told, without treatment, my Dad would have just about a year of life. With treatment, it could extend his life, by possibly 6 months to a year.
We were also told about side effects. And quality of life. And what it would take, to seek treatments. All of it, would be true. My Dad would spend much, of those 9 months, in the hospital. I can't tell you, that life would have been better, had he not received treatments. I don't know if he would have lived longer. Or if this was just God's plan, all along.
What I do know, is that Palliative Care, was our saving grace. That our doctors were very supportive, of my Dad's decisions. Even if they didn't always agree, with him. Our oncologist, really became the one person, that would fight anyone...for the treatment my Dad wanted.
With the elderly, like with all of us, they don't want to give up. They want to live. Any option that is available, they want to try. No matter the side effects. But there has to be a better way, to treat the elderly. There has to be a way, to give them a fighting chance. That not only extends their lives. But improves their quality of life. More than anything, you need to remember, it's their life. They have the right, to fight for it.
Our elderly, should be respected. And their wishes, should be honored. We shouldn't think any differently, because of their age. Medications, should be developed, to improve their lives. And the quality of their lives. We need to remember, they are a particularly weak part of our population. Susceptible to all sorts of things. And really, at the end of the day, they want to live as long as possible.
Big businesses, like insurance companies, hospitals, and pharmaceutical companies, don't think about these things. These are very important things. The things, that really determine a person's real quality of life. You are your loved ones biggest supporter. Their caregiver. And probably, the only person in their corner, really fighting for them. Think about it. Don't just think about costs. But also about their quality of life. What type of care is available. And how your loved one, will live out, their last few days. ❤❤❤
When I came across this article last week, it didn't surprise me. When we first began, the battle, our oncologist warned us. About the costs, the side effects, and my Dad's projected life expectancy. Actually, in so many words, he encouraged us to go home, and enjoy my Dad...and his life, while we still could.
You see, my Dad was 81 years old. In relatively poor health. And all these treatments, might give my Dad, an additional year. MIGHT! My Dad had been diagnosed with Stage 4 Colon Cancer. He also had severe anemia, due to the cancer. He had diabetes, and epilepsy. And the cancer had spread into his liver. There was only one doctor, that would even consider surgery on his liver. My Dad was high risk. And his lifelong battle, with epilepsy, didn't help.
In fact, for his surgery, to remove most of his intestines and to place his stoma...we hit a road block. No anesthesiologists, wanted to treat him. Our surgeon had to practically jump through hoops, that were on fire. To get someone, to join him in the operating room. Because my Dad had, had a serious of seizures. After a million tests and scans...and some medical history, the doctors felt like the cancer was contributing to the seizures. Because my Dad had previously been seizure free, for over 3 years. So he was cleared for surgery.
But my Dad wanted to live. And if the chemo and radiation, would give him an extra day, he'd try it too. He'd try anything. And everything. My Dad didn't have the "typical" symptoms and side effects. But you could tell, that all the treatments, were taking a toll. He struggled a lot. With energy. With pneumonia. And with seizures.
We'd end up on Palliative Care. To help keep a better eye, on my Dad's health. Our doctor would personally call up our insurance company, many times, to argue about care. He'd give my Dad the options. My Dad would ALWAYS choose, to do treatments. And our doctor, would fight to get the treatments approved.
There were also many "supportive medications," that my Dad took. To keep his quality of health, somewhat better. These medications, often times, had high costs attached to them. But my Dad was a fighter. And he was trying to live.
Looking back, I don't know if it was the best decision. But it was my Dad's decision. My Mom and I would listen to the doctors, and my Dad would make the decisions. We were his support system. I can't say, that if I were in his place, that I would have made those same decisions. But we were all educated on the issues. And supported my Dad's decisions.
From the time that we first met our oncologist, until my Dad's passing, it was around 9 months. At our initial appointment, we were told, without treatment, my Dad would have just about a year of life. With treatment, it could extend his life, by possibly 6 months to a year.
We were also told about side effects. And quality of life. And what it would take, to seek treatments. All of it, would be true. My Dad would spend much, of those 9 months, in the hospital. I can't tell you, that life would have been better, had he not received treatments. I don't know if he would have lived longer. Or if this was just God's plan, all along.
What I do know, is that Palliative Care, was our saving grace. That our doctors were very supportive, of my Dad's decisions. Even if they didn't always agree, with him. Our oncologist, really became the one person, that would fight anyone...for the treatment my Dad wanted.
With the elderly, like with all of us, they don't want to give up. They want to live. Any option that is available, they want to try. No matter the side effects. But there has to be a better way, to treat the elderly. There has to be a way, to give them a fighting chance. That not only extends their lives. But improves their quality of life. More than anything, you need to remember, it's their life. They have the right, to fight for it.
Our elderly, should be respected. And their wishes, should be honored. We shouldn't think any differently, because of their age. Medications, should be developed, to improve their lives. And the quality of their lives. We need to remember, they are a particularly weak part of our population. Susceptible to all sorts of things. And really, at the end of the day, they want to live as long as possible.
Big businesses, like insurance companies, hospitals, and pharmaceutical companies, don't think about these things. These are very important things. The things, that really determine a person's real quality of life. You are your loved ones biggest supporter. Their caregiver. And probably, the only person in their corner, really fighting for them. Think about it. Don't just think about costs. But also about their quality of life. What type of care is available. And how your loved one, will live out, their last few days. ❤❤❤
Tuesday, March 15, 2016
Stay Organized
I get this question a lot, "How did you do it all?" I got organized. And it really was, one of the things, that helped my sanity most. First and foremost, you need to get organized. As tough as it seems, it's the beginning and end, to it all. Yes, there will be bumps in the road. And some weeks, will seem tougher than others. But try and stay organized.
The first thing I did, was get a planner. It was exclusively used, for my Dad, his appointments, medications, and hospital stays. I wrote every appointment in there. Whether it was a doctor's appointment, Homecare visit, PT, OT, or a treatment. It all went in my calendar. I'd write it down. And then with a highlighter, I'd color in the time we were supposed to be there.
I also tried to color code everything. So I'd know, if we had to be somewhere. Or if we were having a visit from our Homecare Team. I'd write doctor's appointments, in one color. Chemo treatments in another. Homecare visits, in another. Then I'd use different colors of highlighters.
Yes, at first it was difficult. Later, after I had a system, it got easier. When I'd open the planner, I knew if we had an eye appointment, had to have blood drawn, or if we were having an evaluation by PT. It was so helpful!
Because let's face it, during cancer, there are so many appointments! In one day, we could have a visit from our Homecare nurse, from PT, an appointment at the Cancer Center, a test, and an appointment with our neurologist. Yes, all in one day! And I needed to know, when and where we had to be.
Other things I'd use our planner for, were medications. As in, when we needed refills. At least a month before we needed a written refill, I'd mark it in red. So I could call our doctor. Or let them know, at our appointment. A week before we were out of pills, I'd call the pharmacy. I had a very difficult time, getting my Dad's epilepsy medication. So I ALWAYS had to start early. But I would try and time things together. So I didn't have to make too many trips to the pharmacy.
Along these same lines, I'd put our supplies in here. It was so important to know, how much we had. And when our deliveries would come. There were a few times, I had to go to the hospital, and ask for some ostomy bags. Or I'd ask our Homecare nurse, for some supplies, if we were really low.
But I made sure, to estimate how much we had. And when we would be without. Our Homecare nurse, would do all our ordering. We were very lucky! And I'd wait for the supplies, to show up at our home. With hydration supplies, it was pretty quick. But I always had to check, to make sure, they delivered everything we needed. Did we get enough supplies? With our ostomy supplies, it was all about timing. I needed to let Robin know, with enough time.
If my Dad started to have certain symptoms, or maybe a seizure, I'd also write it down. It was important information. If there was something "new," going on with his stoma, I'd write it down. Then take a picture, with my cell phone.
I made sure to take my planner, to the hospital as well. I'd write every single thing down! How long we were in the ER. Where we were located. What doctors, nurses, and techs came to help. It was very important. Especially in the early days.
Things like, when we changed my Dad's ostomy bag, were also documented. His output. If there was a difference in color, texture, or how much was produced. I would make notes about how he was feeling, eating, and walking. Later when he was given pain meds, through a patch, I'd write down when I changed them. And any symptoms he was having. Anything, and everything, that seemed important...was written down.
I also made sure to write down all his doctor's names and phone numbers. Any facilities we used...like the hospital, treatment centers, and rehab. I also included a list of his medications. And the doses. The last thing that I had, was a list of his medical procedures. Surgeries, diagnosis, and any other procedures...that seemed important.
Along with my planner, our pillbox, was also very important. I kept all of my Dad's pills in there. Every Sunday night, after he went to bed, I'd count out pills. I'd count them, 3 times. And fill the pillbox, for the week. I was the one person, that knew when my Dad took his pills, which ones he took, and when the anti-nausea pills were needed.
Yes, I had everything organized. But it didn't mean it was flawless. There was a time, when some of my older siblings, were taking my Dad to breakfast, and they gave him all the pills for that day. So it's important to note, this is not a foolproof tip. Just a way, to stay organized.
Whoever is taking care of the person, needs to know what pills are taken...and at what time. My Dad took pills for epilepsy. And they needed to be taken at a certain time. Things like sleeping pills, should be obvious. To be taken at night. But not everyone knows, what all those pills are for. Be sure, to make this, something that helps you.
But get to know, all the pills. What they look like. What the shape and color are like. This is also an important tip, when you pick up your medication. I would ALWAYS ask the pharmacist, to open the bottles. If the pills were a different color, or shape, we'd have a talk. This often happened with my Dad's epilepsy medications. And from time to time, with his iron pills.
And organize your supplies. I ended up, buying 2 midsized storage containers. Clear ones. That I could stick in the closet. So I could see our supplies. And every single time, we got a shipment, I'd check them. Make sure everything on the list, was in the box. Then I'd pull out our old supplies, and put the new stuff, on the bottom of the container.
We got hydration supplies, delivered twice a month. And it was important to keep all of that dry, clean, and organized. I kept that supplies, in one box. Making sure, to have enough room, for the bags of saline. I didn't want to bust a bag. And also making sure, that the older product, got used first.
Our other box, was full of ostomy supplies. Bags, rings, powder, scissors, cream, soap, extra containers. I kept a very close eye, on this box. These were the supplies, we had the most difficult time, keeping up with. The delivery, wasn't the best. And insurance, limited the amount you got. So I had to make sure, we always had enough.
Getting and staying organized, is essential. During a chaotic time, like battling cancer. You have enough to worry about. And probably, more than enough, on your plate. So you need to make sure, you have everything organized.
I'm sure, no one thought I was organized. If they'd come to our home, they would look at you, like you were crazy. If you told them, I was organized. But these things, were always organized! Along with the supplies my Dad needed, for PT. Weights, chairs, and bands. And the supplies he needed, to get around. Bars in the bathroom, a bathmat, in the bathtub, his 2 wheeled walker, his 4 wheeled walker, and his wheelchair. And of course, his bag.
It made life, a lot easier. I wasn't going to miss an appointment. I knew when our Homecare team, would be visiting. I wouldn't suddenly, run out of medications. It took a lot of pressure off of. And left me more available, to take care of my Dad. That's how I managed to do so much. Being extra organized, with these details. ❤❤❤
The first thing I did, was get a planner. It was exclusively used, for my Dad, his appointments, medications, and hospital stays. I wrote every appointment in there. Whether it was a doctor's appointment, Homecare visit, PT, OT, or a treatment. It all went in my calendar. I'd write it down. And then with a highlighter, I'd color in the time we were supposed to be there.
I also tried to color code everything. So I'd know, if we had to be somewhere. Or if we were having a visit from our Homecare Team. I'd write doctor's appointments, in one color. Chemo treatments in another. Homecare visits, in another. Then I'd use different colors of highlighters.
Yes, at first it was difficult. Later, after I had a system, it got easier. When I'd open the planner, I knew if we had an eye appointment, had to have blood drawn, or if we were having an evaluation by PT. It was so helpful!
Because let's face it, during cancer, there are so many appointments! In one day, we could have a visit from our Homecare nurse, from PT, an appointment at the Cancer Center, a test, and an appointment with our neurologist. Yes, all in one day! And I needed to know, when and where we had to be.
Other things I'd use our planner for, were medications. As in, when we needed refills. At least a month before we needed a written refill, I'd mark it in red. So I could call our doctor. Or let them know, at our appointment. A week before we were out of pills, I'd call the pharmacy. I had a very difficult time, getting my Dad's epilepsy medication. So I ALWAYS had to start early. But I would try and time things together. So I didn't have to make too many trips to the pharmacy.
Along these same lines, I'd put our supplies in here. It was so important to know, how much we had. And when our deliveries would come. There were a few times, I had to go to the hospital, and ask for some ostomy bags. Or I'd ask our Homecare nurse, for some supplies, if we were really low.
But I made sure, to estimate how much we had. And when we would be without. Our Homecare nurse, would do all our ordering. We were very lucky! And I'd wait for the supplies, to show up at our home. With hydration supplies, it was pretty quick. But I always had to check, to make sure, they delivered everything we needed. Did we get enough supplies? With our ostomy supplies, it was all about timing. I needed to let Robin know, with enough time.
If my Dad started to have certain symptoms, or maybe a seizure, I'd also write it down. It was important information. If there was something "new," going on with his stoma, I'd write it down. Then take a picture, with my cell phone.
I made sure to take my planner, to the hospital as well. I'd write every single thing down! How long we were in the ER. Where we were located. What doctors, nurses, and techs came to help. It was very important. Especially in the early days.
Things like, when we changed my Dad's ostomy bag, were also documented. His output. If there was a difference in color, texture, or how much was produced. I would make notes about how he was feeling, eating, and walking. Later when he was given pain meds, through a patch, I'd write down when I changed them. And any symptoms he was having. Anything, and everything, that seemed important...was written down.
I also made sure to write down all his doctor's names and phone numbers. Any facilities we used...like the hospital, treatment centers, and rehab. I also included a list of his medications. And the doses. The last thing that I had, was a list of his medical procedures. Surgeries, diagnosis, and any other procedures...that seemed important.
Along with my planner, our pillbox, was also very important. I kept all of my Dad's pills in there. Every Sunday night, after he went to bed, I'd count out pills. I'd count them, 3 times. And fill the pillbox, for the week. I was the one person, that knew when my Dad took his pills, which ones he took, and when the anti-nausea pills were needed.
Yes, I had everything organized. But it didn't mean it was flawless. There was a time, when some of my older siblings, were taking my Dad to breakfast, and they gave him all the pills for that day. So it's important to note, this is not a foolproof tip. Just a way, to stay organized.
Whoever is taking care of the person, needs to know what pills are taken...and at what time. My Dad took pills for epilepsy. And they needed to be taken at a certain time. Things like sleeping pills, should be obvious. To be taken at night. But not everyone knows, what all those pills are for. Be sure, to make this, something that helps you.
But get to know, all the pills. What they look like. What the shape and color are like. This is also an important tip, when you pick up your medication. I would ALWAYS ask the pharmacist, to open the bottles. If the pills were a different color, or shape, we'd have a talk. This often happened with my Dad's epilepsy medications. And from time to time, with his iron pills.
And organize your supplies. I ended up, buying 2 midsized storage containers. Clear ones. That I could stick in the closet. So I could see our supplies. And every single time, we got a shipment, I'd check them. Make sure everything on the list, was in the box. Then I'd pull out our old supplies, and put the new stuff, on the bottom of the container.
We got hydration supplies, delivered twice a month. And it was important to keep all of that dry, clean, and organized. I kept that supplies, in one box. Making sure, to have enough room, for the bags of saline. I didn't want to bust a bag. And also making sure, that the older product, got used first.
Our other box, was full of ostomy supplies. Bags, rings, powder, scissors, cream, soap, extra containers. I kept a very close eye, on this box. These were the supplies, we had the most difficult time, keeping up with. The delivery, wasn't the best. And insurance, limited the amount you got. So I had to make sure, we always had enough.
Getting and staying organized, is essential. During a chaotic time, like battling cancer. You have enough to worry about. And probably, more than enough, on your plate. So you need to make sure, you have everything organized.
I'm sure, no one thought I was organized. If they'd come to our home, they would look at you, like you were crazy. If you told them, I was organized. But these things, were always organized! Along with the supplies my Dad needed, for PT. Weights, chairs, and bands. And the supplies he needed, to get around. Bars in the bathroom, a bathmat, in the bathtub, his 2 wheeled walker, his 4 wheeled walker, and his wheelchair. And of course, his bag.
It made life, a lot easier. I wasn't going to miss an appointment. I knew when our Homecare team, would be visiting. I wouldn't suddenly, run out of medications. It took a lot of pressure off of. And left me more available, to take care of my Dad. That's how I managed to do so much. Being extra organized, with these details. ❤❤❤
Monday, March 14, 2016
At Home Screening
We all know, just how important cancer screening is. Especially, if you are considered, "High Risk." Often times, insurance companies, aren't so happy to approve screening. Especially if you are young. It doesn't matter to them, that you are carrying a high risk. That means nothing, to them. They just see dollar signs.
And the reality is, it would probably cost them less, to screen these types of people. Like myself. If it's caught early, there is less care needed. Therefore, it costs the insurance companies less. And it gives us, the high risk people, a better shot at a long and healthy life.
I found this article. And was stunned. I'd never heard about, at home screening. A simple little test. That possibly could save lives. Or at least, grab the attention of your doctor. Cologuard was even approved by the FDA, in 2014.
While I still think, a colonoscopy is the best way to go, for screening. I would definitely like to try this. It's another safety precaution, to take. Especially, if you have the risk, in your family. And are a young adult. I know on the website, they talk about people who are 50+. But I think, this is a good option, for those people, who can't get colonoscopy approval.
Even with the amazing doctor, that I have in my corner, I'm fighting to be approved for a colonoscopy. I'm 32 years old. Healthy. And I appear, to have nothing wrong with me. In today's world, that gives the insurance company, all rights to say no. No to my screening. Until I'm 50 years old.
It's crazy. The doctors in my corner, are all fighting for me. Just so I have a better chance at life. A sense of ease. With knowing, if I am a true risk, or not. But with a HUGE list, of people waiting for colonoscopies, and just to see GI doctors....I know I have an uphill battle.
So here are my thoughts. Our health, is in our own hands. If we don't fight for ourselves, who will? It took my Dad, almost 3 1/2 years, to receive a colonoscopy. And he was sick. Hospitalized many times. For weeks, at a time. He had ALL the signs, of colon cancer.
For me, the relatively healthy young adult...must fight. And if this is what I have to turn to, well I'll be going to my doctor. Asking for a prescription. And you know what? I'm thankful, to have something like this, to lean on. At least, it gives me, a fighting chance. ❤❤❤
And the reality is, it would probably cost them less, to screen these types of people. Like myself. If it's caught early, there is less care needed. Therefore, it costs the insurance companies less. And it gives us, the high risk people, a better shot at a long and healthy life.
I found this article. And was stunned. I'd never heard about, at home screening. A simple little test. That possibly could save lives. Or at least, grab the attention of your doctor. Cologuard was even approved by the FDA, in 2014.
While I still think, a colonoscopy is the best way to go, for screening. I would definitely like to try this. It's another safety precaution, to take. Especially, if you have the risk, in your family. And are a young adult. I know on the website, they talk about people who are 50+. But I think, this is a good option, for those people, who can't get colonoscopy approval.
Even with the amazing doctor, that I have in my corner, I'm fighting to be approved for a colonoscopy. I'm 32 years old. Healthy. And I appear, to have nothing wrong with me. In today's world, that gives the insurance company, all rights to say no. No to my screening. Until I'm 50 years old.
It's crazy. The doctors in my corner, are all fighting for me. Just so I have a better chance at life. A sense of ease. With knowing, if I am a true risk, or not. But with a HUGE list, of people waiting for colonoscopies, and just to see GI doctors....I know I have an uphill battle.
So here are my thoughts. Our health, is in our own hands. If we don't fight for ourselves, who will? It took my Dad, almost 3 1/2 years, to receive a colonoscopy. And he was sick. Hospitalized many times. For weeks, at a time. He had ALL the signs, of colon cancer.
For me, the relatively healthy young adult...must fight. And if this is what I have to turn to, well I'll be going to my doctor. Asking for a prescription. And you know what? I'm thankful, to have something like this, to lean on. At least, it gives me, a fighting chance. ❤❤❤
Tuesday, March 8, 2016
Be Prepared
Over social media, and through e-mails, I get this question a lot. "How did you guys prepare, when you went out?" In terms of supplies, and being able to empty my Dad's ostomy bag. The reality is, it took a little trial and error. And it took experience. My Dad, wasn't someone who stayed home. So almost immediately following his surgery, we got prepared.
My first recommendation would be, get a bag. A tote bag, or backpack. And load up your supplies. We ALWAYS carried our bag with us. My Dad used a one piece system. But we always had 2 or 3 ostomy bags with us. And the same number of rings. We had a couple of washcloths. Paper towels. A few small trash bags. And a pair of scissors. It's important, to use the scissors just for this purpose. Nothing else!
In our bag, we also had a cylinder, that we received at the hospital. It was something the nurses used, to empty the bag, in the beginning. And it became a lifeline. We'd use it, to empty my Dad's ostomy bag. Whether it was in a restroom. Or sometimes, it happened in our vehicle. I'd recommend finding some sort of vessel, that works for you.
In our vehicle, we always carried a jug of water. And some foam soap, that we also received from the hospital. We also had a spare cylinder, and a small wash tub. We were so lucky, that the hospital supplied us, with so much stuff.
Also in our vehicle, we carried extra clothes. I'm pretty sure, if you are somewhat familiar with an ostomy bag, you've experienced a "blow up," before. And so did we. Even the most well planned outing, can have a hiccup. Or two. Sometimes three.
Make sure, to have supplies for yourself. In terms of hand sanitizer, wipes, and gloves (if you use them.) We never did. But I know, lots of people do. Make sure, to carry these things as well. Nothing is worse, than being stuck somewhere, without them. Imagine cleaning up your loved one. And realizing you can't clean your own hands?
We were also lucky enough, to have a large vehicle. A van. With window coverings, that made it a semi-private area. So if we did experience a "blow up," we could clean my Dad up. Without having to worry about people watching us. I know, not everyone has this luxury. But it was nice.
But then, my Dad was 81, when we were going through this. He struggled to do a lot for himself. Not just because of his age. But his failing health. If you're younger, more than likely, you'll be able to go to the restroom by yourself. To empty your bag. Or clean up, after a problem. But my Dad needed help.
Another thing to look for, are "Family Restrooms." We did this often. Most of the time, we'd look for one, the minute we got somewhere. Or we'd ask, if it was possible, for my Mom or I...to go with my Dad to the restroom. You'd surprised, at how many people are so helpful. In places that didn't have "Family Restrooms," many times a man, would clear out the restroom for us. We'd go to the "Handicap Stall," and do our business. Usually just taking 5 minutes or so.
My other big recommendation would be, monitor your ostomy output. Pay attention to when you eat, and when your bag needs to be emptied. Soon you'll notice a pattern. My Dad usually had about 10-20 minutes, after a meal. If we were going out, and had eaten, we'd wait. Until his ostomy, did it's thing. We'd empty the bag at home. And then head out.
If we were going out to eat, and knew we'd be out afterwards, we'd hangout at the restaurant a little longer. If we were going home, we knew, how much time we had. But you'll learn this. Over time, it will become easier. In our case, the pattern developed almost immediately. And it stood the same, through our entire journey.
I'd also recommend, getting to know your ostomy. Know what foods, create more output. Or a faster output. What foods, aggravate the situation. Once you become familiar, it will assist you in so many ways. For us, there were certain foods, that created a ton of gas. If my Dad ate them, we knew we had to "burb" the ostomy bag...pretty quickly. And often. Or else, we'd have a "blow up."
We also learned, during our "Chemo Week," things changed. The output was different. A different consistency, smell, and timing. We had to stay on top of things. But even then, "Chemo Week," had it's own schedule.
In the beginning, to learn about these things, I wrote everything down. I got a planner, that was used, just for this purpose. So we could learn, about the osotomy output. Soon, I saw all the patterns. It made planning outings, less daunting.
My biggest suggestion would be, just be prepared. Don't stay home, just because of the ostomy. There will be messes. No matter, how hard you plan. Just be prepared. Take a few towels with you, some extra clothes, and your supplies. But get out. Make your first few outings, short. Maybe close to home. And as you gain confidence, try going out, for longer periods of time.
As we got comfortable, we'd go out to eat. Which usually took us 2-3 hours. We'd take my Dad to the casino, for 6 or more hours. We'd go on road trips, shopping, to family get-togethers, visiting friends, and so much more.
My last suggestion is, don't leave your supplies in your vehicle. I know, that all these people say, the heat doesn't affect your supplies. But for us, it did. We noticed this, the first time a supply order, was delivered in the summer. While we were at chemo. And it sat in the heat, all day. Those bags, and rings, did not work well. In fact, prior to that, a bag would last 5 days. With that batch, we'd maybe get a day. Then one day, we left our supplies in the car, for a few hours in the afternoon. When we used those supplies, we had the same issue.
After that, we knew, that supplies had to come with us. Even if it was inside a store, to a family outing, wherever. We also made sure, that deliveries happened, when we were home. No one wants to have a "blow up," only to clean up and change...then have another. Because it's been exposed to the heat. Also, we live in the southwest. And it gets well over 100 degrees, in your car, during the summer.
No matter what the issue, I'd say, don't be afraid to go out. Have fun. But be prepared. Not just in terms of supplies. But prepared, that an accident will happen. Eventually, it will happen to you. But never let that stop you. You still have to live. And enjoy life. Just be prepared. ❤❤❤
My first recommendation would be, get a bag. A tote bag, or backpack. And load up your supplies. We ALWAYS carried our bag with us. My Dad used a one piece system. But we always had 2 or 3 ostomy bags with us. And the same number of rings. We had a couple of washcloths. Paper towels. A few small trash bags. And a pair of scissors. It's important, to use the scissors just for this purpose. Nothing else!
In our bag, we also had a cylinder, that we received at the hospital. It was something the nurses used, to empty the bag, in the beginning. And it became a lifeline. We'd use it, to empty my Dad's ostomy bag. Whether it was in a restroom. Or sometimes, it happened in our vehicle. I'd recommend finding some sort of vessel, that works for you.
In our vehicle, we always carried a jug of water. And some foam soap, that we also received from the hospital. We also had a spare cylinder, and a small wash tub. We were so lucky, that the hospital supplied us, with so much stuff.
Also in our vehicle, we carried extra clothes. I'm pretty sure, if you are somewhat familiar with an ostomy bag, you've experienced a "blow up," before. And so did we. Even the most well planned outing, can have a hiccup. Or two. Sometimes three.
Make sure, to have supplies for yourself. In terms of hand sanitizer, wipes, and gloves (if you use them.) We never did. But I know, lots of people do. Make sure, to carry these things as well. Nothing is worse, than being stuck somewhere, without them. Imagine cleaning up your loved one. And realizing you can't clean your own hands?
We were also lucky enough, to have a large vehicle. A van. With window coverings, that made it a semi-private area. So if we did experience a "blow up," we could clean my Dad up. Without having to worry about people watching us. I know, not everyone has this luxury. But it was nice.
But then, my Dad was 81, when we were going through this. He struggled to do a lot for himself. Not just because of his age. But his failing health. If you're younger, more than likely, you'll be able to go to the restroom by yourself. To empty your bag. Or clean up, after a problem. But my Dad needed help.
Another thing to look for, are "Family Restrooms." We did this often. Most of the time, we'd look for one, the minute we got somewhere. Or we'd ask, if it was possible, for my Mom or I...to go with my Dad to the restroom. You'd surprised, at how many people are so helpful. In places that didn't have "Family Restrooms," many times a man, would clear out the restroom for us. We'd go to the "Handicap Stall," and do our business. Usually just taking 5 minutes or so.
My other big recommendation would be, monitor your ostomy output. Pay attention to when you eat, and when your bag needs to be emptied. Soon you'll notice a pattern. My Dad usually had about 10-20 minutes, after a meal. If we were going out, and had eaten, we'd wait. Until his ostomy, did it's thing. We'd empty the bag at home. And then head out.
If we were going out to eat, and knew we'd be out afterwards, we'd hangout at the restaurant a little longer. If we were going home, we knew, how much time we had. But you'll learn this. Over time, it will become easier. In our case, the pattern developed almost immediately. And it stood the same, through our entire journey.
I'd also recommend, getting to know your ostomy. Know what foods, create more output. Or a faster output. What foods, aggravate the situation. Once you become familiar, it will assist you in so many ways. For us, there were certain foods, that created a ton of gas. If my Dad ate them, we knew we had to "burb" the ostomy bag...pretty quickly. And often. Or else, we'd have a "blow up."
We also learned, during our "Chemo Week," things changed. The output was different. A different consistency, smell, and timing. We had to stay on top of things. But even then, "Chemo Week," had it's own schedule.
In the beginning, to learn about these things, I wrote everything down. I got a planner, that was used, just for this purpose. So we could learn, about the osotomy output. Soon, I saw all the patterns. It made planning outings, less daunting.
My biggest suggestion would be, just be prepared. Don't stay home, just because of the ostomy. There will be messes. No matter, how hard you plan. Just be prepared. Take a few towels with you, some extra clothes, and your supplies. But get out. Make your first few outings, short. Maybe close to home. And as you gain confidence, try going out, for longer periods of time.
As we got comfortable, we'd go out to eat. Which usually took us 2-3 hours. We'd take my Dad to the casino, for 6 or more hours. We'd go on road trips, shopping, to family get-togethers, visiting friends, and so much more.
My last suggestion is, don't leave your supplies in your vehicle. I know, that all these people say, the heat doesn't affect your supplies. But for us, it did. We noticed this, the first time a supply order, was delivered in the summer. While we were at chemo. And it sat in the heat, all day. Those bags, and rings, did not work well. In fact, prior to that, a bag would last 5 days. With that batch, we'd maybe get a day. Then one day, we left our supplies in the car, for a few hours in the afternoon. When we used those supplies, we had the same issue.
After that, we knew, that supplies had to come with us. Even if it was inside a store, to a family outing, wherever. We also made sure, that deliveries happened, when we were home. No one wants to have a "blow up," only to clean up and change...then have another. Because it's been exposed to the heat. Also, we live in the southwest. And it gets well over 100 degrees, in your car, during the summer.
No matter what the issue, I'd say, don't be afraid to go out. Have fun. But be prepared. Not just in terms of supplies. But prepared, that an accident will happen. Eventually, it will happen to you. But never let that stop you. You still have to live. And enjoy life. Just be prepared. ❤❤❤
Monday, March 7, 2016
Benefits of Aspirin
Aspirin is used, in many ways, to prevent disease. In fact, both of my parents, have taken a daily dose. It's something that most people, don't really think of.
My Mom has taken aspirin, for a few years now. A recommendation, from her doctor. My Dad, took aspirin, in his last year or so, of life. It had to do with other medications, that he was taking. It didn't add much, to the daily medications, that he was already taking. And the cost was minimal.
I say this, because the benefits are great. Outstanding really! I'd been hearing about a connection, between aspirin and gastrointestinal cancers, for over a year now. From a colleague. In fact, it was recommended to me, to begin the daily low-dose, aspirin regimen.
After reading this article. And reading through the original article, from the JAMA, I'm convinced. A 19% drop, in colorectal cancer. And a 15% drop in gastrointestinal cancers. That is amazing! It gives someone like me, some hope. I'm a high risk individual. But most insurance companies, and doctors, don't believe I should be screened for...another 12+ years.
Aspirin, will never take the place of a colonoscopy. But there is significant research, and evidence, that it helps. And if it helps, why not try it? Especially, if you are someone with a family history, of colon cancer.
Just remember, always talk it over with your doctor first. There are also risks, involved with taking aspirin. And your total health, should be considered. But for me, and I'm assuming many individuals, the benefits, outweigh the risks. I know, what I'll be adding to my morning routine. ❤❤❤
My Mom has taken aspirin, for a few years now. A recommendation, from her doctor. My Dad, took aspirin, in his last year or so, of life. It had to do with other medications, that he was taking. It didn't add much, to the daily medications, that he was already taking. And the cost was minimal.
I say this, because the benefits are great. Outstanding really! I'd been hearing about a connection, between aspirin and gastrointestinal cancers, for over a year now. From a colleague. In fact, it was recommended to me, to begin the daily low-dose, aspirin regimen.
After reading this article. And reading through the original article, from the JAMA, I'm convinced. A 19% drop, in colorectal cancer. And a 15% drop in gastrointestinal cancers. That is amazing! It gives someone like me, some hope. I'm a high risk individual. But most insurance companies, and doctors, don't believe I should be screened for...another 12+ years.
Aspirin, will never take the place of a colonoscopy. But there is significant research, and evidence, that it helps. And if it helps, why not try it? Especially, if you are someone with a family history, of colon cancer.
Just remember, always talk it over with your doctor first. There are also risks, involved with taking aspirin. And your total health, should be considered. But for me, and I'm assuming many individuals, the benefits, outweigh the risks. I know, what I'll be adding to my morning routine. ❤❤❤
Monday, February 29, 2016
In the Genes?
Interesting. That's what I thought, as I read this article. Makes me wonder about a lot of different things. Especially, over the last few months. I've researched a lot of different areas...associated with colon cancer.
And now, what I'd always thought...seems to be backed up. With a little research. Don't get me wrong. There is still much to be researched, and studied.
But for me, it just solidifies the importance, of colonoscopies, screening, and knowing your history. Yes, it is very important to live a healthy lifestyle. But equally as important, is knowing your history. Knowing the chances of a possible cancer. And staying on top, of all those things.
I just find it intriguing, that the mutation of the APC gene, was found in an 18th century mummy. Goes to show, just how important our "Family History," really is. Did it cause colon cancer? We don't know. But it was there.
Can you imagine, all those years ago...having this mutation? This early research, doesn't really prove what causes modern day colon cancer. Much like, "What came first? The chicken? Or the egg?" But we know have a better understanding, of the importance, of screening. ❤❤❤
And now, what I'd always thought...seems to be backed up. With a little research. Don't get me wrong. There is still much to be researched, and studied.
But for me, it just solidifies the importance, of colonoscopies, screening, and knowing your history. Yes, it is very important to live a healthy lifestyle. But equally as important, is knowing your history. Knowing the chances of a possible cancer. And staying on top, of all those things.
I just find it intriguing, that the mutation of the APC gene, was found in an 18th century mummy. Goes to show, just how important our "Family History," really is. Did it cause colon cancer? We don't know. But it was there.
Can you imagine, all those years ago...having this mutation? This early research, doesn't really prove what causes modern day colon cancer. Much like, "What came first? The chicken? Or the egg?" But we know have a better understanding, of the importance, of screening. ❤❤❤
Monday, February 22, 2016
Colon Cancer and Young Adults
Along this journey, there have been few things I fear. One, obviously, was my Dad having cancer. Two, was losing him. Three, was me, one day being diagnosed.
It's not the kind of thing, that I stress about daily. It's the type of thing, that I wonder about. From time to time. Like when I try and schedule a routine colonoscopy. And I'm told I'm too young. Or don't have high enough risk factors. And I think, my Dad had Stage 4 Colon Cancer. Which spread. And he died...
It's become something, that I've put on my radar. But not "worried myself to death" about. Do you know what I mean? I might read a few more articles about colon cancer. Or sometimes, think in the back of my mind, could this be a symptom? Should I be concerned?
And then, I might get literature from work. Stating that colon cancer is on the rise. Something that shouldn't be put aside. It should be on people's radars. And I think again. Should I be concerned?
I came across this article, and I realized, I'm not crazy. I need to stay on top of this. I do eat a well balanced diet. High in fresh fruits and veggies. Lots of fiber. I try to exercise. And keep my weight healthy. But that doesn't guarantee anything. My Dad had Stage 4 Colon Cancer. I need to be proactive.
If one doctor says, no to a colonoscopy, it's not only my right...but my choice to find another doctor. One that can make me feel better. I've learned, that it's also essential, to lean on our medical team. The one, that cared for my Dad. They know his history. Therefore, they'll know most of mine. And my risks. And will probably be, the only ones that really listen.
After reading this article, I know I'm not crazy. These are serious topics. It's our life, in our hands. I watched my Dad, battle this disease. I saw him before, and after, his diagnosis. I insisted for years, that he have a colonoscopy. And now realize, that without my pushing, who knows if he would have ever been diagnosed.
It's made me a stronger person. With me, more settled in my ways. I'm now insured. And hope, against all hope, that I can be tested. At least, within the year. I'm a person that monitors a lot. By nature. It's not strange that I monitor my stools. I'm a trained RD. And for much of my early career, it was my job, to measure and monitor people's stools.
So I try to make sure I'm OK. Most of the time. I try and watch what I eat. How tired I get. What goes in, and out, of my body. I also would like to know, if I had cancer. No matter what my age is. Now, in 10 years, or in 30 years. It's my right.
Would I seek treatment? That's a loaded question for me. One that would depend on my age. If I had children. What was at risk? How early had they caught it? Would I have a fighting chance? If not, I couldn't imagine, going through what my Dad went through. Putting my body through all of that, to know where I was headed. But that's also my right.
As shocking as this all seems, we're just young adults. And we have rights. We have the right, to be checked. And told the honest truth. We have the right, to make decisions, about our future. And if we don't fight for ourselves, who will? Don't forget that. If nothing else, educate yourself. Who knows, when you'll need the information. ❤❤❤
It's not the kind of thing, that I stress about daily. It's the type of thing, that I wonder about. From time to time. Like when I try and schedule a routine colonoscopy. And I'm told I'm too young. Or don't have high enough risk factors. And I think, my Dad had Stage 4 Colon Cancer. Which spread. And he died...
It's become something, that I've put on my radar. But not "worried myself to death" about. Do you know what I mean? I might read a few more articles about colon cancer. Or sometimes, think in the back of my mind, could this be a symptom? Should I be concerned?
And then, I might get literature from work. Stating that colon cancer is on the rise. Something that shouldn't be put aside. It should be on people's radars. And I think again. Should I be concerned?
I came across this article, and I realized, I'm not crazy. I need to stay on top of this. I do eat a well balanced diet. High in fresh fruits and veggies. Lots of fiber. I try to exercise. And keep my weight healthy. But that doesn't guarantee anything. My Dad had Stage 4 Colon Cancer. I need to be proactive.
If one doctor says, no to a colonoscopy, it's not only my right...but my choice to find another doctor. One that can make me feel better. I've learned, that it's also essential, to lean on our medical team. The one, that cared for my Dad. They know his history. Therefore, they'll know most of mine. And my risks. And will probably be, the only ones that really listen.
After reading this article, I know I'm not crazy. These are serious topics. It's our life, in our hands. I watched my Dad, battle this disease. I saw him before, and after, his diagnosis. I insisted for years, that he have a colonoscopy. And now realize, that without my pushing, who knows if he would have ever been diagnosed.
It's made me a stronger person. With me, more settled in my ways. I'm now insured. And hope, against all hope, that I can be tested. At least, within the year. I'm a person that monitors a lot. By nature. It's not strange that I monitor my stools. I'm a trained RD. And for much of my early career, it was my job, to measure and monitor people's stools.
So I try to make sure I'm OK. Most of the time. I try and watch what I eat. How tired I get. What goes in, and out, of my body. I also would like to know, if I had cancer. No matter what my age is. Now, in 10 years, or in 30 years. It's my right.
Would I seek treatment? That's a loaded question for me. One that would depend on my age. If I had children. What was at risk? How early had they caught it? Would I have a fighting chance? If not, I couldn't imagine, going through what my Dad went through. Putting my body through all of that, to know where I was headed. But that's also my right.
As shocking as this all seems, we're just young adults. And we have rights. We have the right, to be checked. And told the honest truth. We have the right, to make decisions, about our future. And if we don't fight for ourselves, who will? Don't forget that. If nothing else, educate yourself. Who knows, when you'll need the information. ❤❤❤
Wednesday, March 25, 2015
Please Wear Blue
As difficult, as the last few days have been, we are trying to find the bright spots. And we are asking everyone, that is attending my Dad's services, to wear blue. We don't want to look at his passing, with such heavy hearts. It is a difficult time. The most difficult, that I've ever experienced.
But weeks ago, my Dad asked me, to make sure his services...were a "Celebration of His Life." And that is what I'm asking you. To think of the good times, your good memories, and my Dad's accomplishments. Think of all the joy, that my Dad brought you. There will always be time to mourn. Let these few days, be a "Celebration of Life."
I say this, because funerals are always difficult. There are many tears to be shed. It's heartbreaking, to say goodbye, to your loved one. But for my Dad, we want it to be different. We want people to remember the good times. It's what he wanted. It's what he asked for. And it's what, I'm going to try and give him.
It doesn't matter the color of blue. We just want, to paint the church blue. Because he was Blue. Because he battled colon cancer, with everything he had. And because, we love him. I hope that you, will join us. And that you will spread the word.
During these difficult days, it's the one thing, that can make a person smile. I'm not looking forward to my Daddy's services. But I know, I will feel the comfort, looking out at a "Sea of Blue." And I know, my Daddy, will be smiling down from Heaven. ❤❤❤
But weeks ago, my Dad asked me, to make sure his services...were a "Celebration of His Life." And that is what I'm asking you. To think of the good times, your good memories, and my Dad's accomplishments. Think of all the joy, that my Dad brought you. There will always be time to mourn. Let these few days, be a "Celebration of Life."
I say this, because funerals are always difficult. There are many tears to be shed. It's heartbreaking, to say goodbye, to your loved one. But for my Dad, we want it to be different. We want people to remember the good times. It's what he wanted. It's what he asked for. And it's what, I'm going to try and give him.
It doesn't matter the color of blue. We just want, to paint the church blue. Because he was Blue. Because he battled colon cancer, with everything he had. And because, we love him. I hope that you, will join us. And that you will spread the word.
During these difficult days, it's the one thing, that can make a person smile. I'm not looking forward to my Daddy's services. But I know, I will feel the comfort, looking out at a "Sea of Blue." And I know, my Daddy, will be smiling down from Heaven. ❤❤❤
Friday, March 6, 2015
Dress in Blue Day
Today, is Dress in Blue Day. The day, when we ask you, to sport your favorite blue outfit. Why? To support those people, battling Colon Cancer. Showing them, and their loved ones, that you support them. And their cause. That they, matter.
I'll be the first one, to tell you, before my Dad was diagnosed...I didn't know about this. But now that I do, I'm wearing my blue. And asking you to, as well. It's very important. To all those people, touched by Colon Cancer. The patients, family, friends, caregivers, and medical team.
Because the harsh reality is, colon cancer, is on the rise. It's not rallied behind, like breast cancer. you don't see HUGE fundraising efforts made. Corporate companies aren't making Colon Cancer items. And selling them in your local Wal-Mart, Target, and Walgreen's. But the numbers are growing. And we need to be supportive, of the people battling this disease. ❤❤❤
Because the harsh reality is, colon cancer, is on the rise. It's not rallied behind, like breast cancer. you don't see HUGE fundraising efforts made. Corporate companies aren't making Colon Cancer items. And selling them in your local Wal-Mart, Target, and Walgreen's. But the numbers are growing. And we need to be supportive, of the people battling this disease. ❤❤❤
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